Evening all.

Well this weekend was interesting as it was our first weekend in our little caravan.  I’ve done camping before as a kid and with my family but being in the caravan now, I didn’t knot realise how much we have adapted things to help me on a daily basis.

I had a spare pod coffee machine at home which has ended up in the caravan with me speculating that I would not use it -boy was I wrong!!

I actually ended up using it to make coffee along with other hot drinks because there was no need for me to fill a kettle then lift a heavy, boiling kettle to make a drink. It was literally cup underneath turn to hot water and machine did it all for me.

The same goes to other gadgets purchased for the caravan to help mainly my husband put the awning up as I’m not able to extend the awning poles and then tighten them up. The same goes with putting things we have at home in the caravan – mobile Internet,  fire stick in TV,  easy to use cups, a step to get out the caravan which is more sturdy and wider than old steps.

The adjustments made so far are little things whigh you don’t realise you have done so that you can enjoy your holiday more. I’ve also started doing the adult colouring books which do help taking my mind off things, can’t colour for very long though due to holding pencils but now and again helps.

To be fair this holiday has been tough though as I am currently off my methotrexate until beginning of April due to daughter having chicken pox. Due to my illness I am a high risk at catching other illnesses so for precaution my rheumatologist has taken me off methotrexate until my blood work comes back. I know being off and letting my immune system fight anything off on its own is good but having sore joints and being constantly inflamed makes me realise how much I depend on my medication.

Happy Wednesday everyone xx

No one actually realises how hard life can be living with an auto immune system.

My daughter has come down with chicken pox this week – luckily she’s only 2 1/2 so doesn’t quite understand what is wrong with her.  But it is frustrating when your trying to work out how to help ease the pain and itching.

With her having chicken pox it did result in contacting my GPS regarding myself being in such close contact with her. The result of what I should do was what I thought it would be – No methotrexate for 3 weeks!

This is the first time in 18months that I have gone without taking methotrexate so will be interesting to see how my body behaves without it. The good thing is though off work for 10 days which if I do have a flare will be at home for most of it.

When you have an auto immune system due to the medication you and take for your condition people don’t realise how much it effects you physically and mentally . Your always cautious being around people who are unwell as you do not want to catch what they have as you know you will be worse with it.

Well it’s been a few weeks since my last post and the yo yo effect has been on permanently lately. One minute I am feeling fine like nothing can stop me and the next minute I am a complete emotional wreck which is not caused by anything in particular.

I did share on my Facebook page the other day and article that came up on my main Facebook timeliness in regards to working with a form of arthritis. It is based around people in a working environment living with an arthritis condition.  I work 4 x 10 hour shifts a week  then have 3 days off in between so I have adequate rest in between shifts plus I inject medication on my first day off so if I am not feeling 100% I know I have the recovery time in between shifts.

A frequent question I do get asked by people is “how do you manage it? Working full time plus being a full time mum to a toddler.” The answer is I have to! If I let myself get really down about my illness it will just drag everything else down with me. I’m not the sort of person who gives up very easily on things if I feel absolute rubbish and I know I should be resting, most of the time I am constantly pushing myself to get things done when I know in the long run its going to make me worse.

Yes life needs to stop and slow down when you know deep down you are going to regret doing something the next day but deep in my head I know I push myself for my family. I want to make sure my little one has everything she’ll need growing up and that we have quality family time together when we can.

http://www.bbc.co.uk/news/health-39043187

Happy Wednesday Everyone xx