Well since the end of July it has been quite a busy period and “FINALLY” back under control with medication after seeing Consultant. Awaiting pain clinic to get the pain I am feeling with the PSA under control as not many pain medications are helping.
Still on a DMARD medication – Leflunomide which does have similar qualities as Methotrexate the one downside is it is a tablet which has to be taken every day instead of the usual inject once a week. The one positive is the nausea which is a side effect has not been as prominent as when taking Methotrexate. Only get nausea spells now and again mainly when not eaten much food or drunk much fluid.
As part of all this it is the usual 6monthly check ups along with blood work every 2 weeks for 3 months (a downside as have to plan with it all) but anyone that knows me as a person knows that I am extremely organised with everything and everything I do is planned out along with being colour coded on my phone calendar so that I know where I am. Which in turn does show up on my home smart device in our Kitchen so that we are both aware with what is going on in my calendar.
Referring back to awaiting pain clinic this is a clinic which is no the quickest and you are waiting for a period of time for an appointment but in the end I know the short term of waiting will be beneficial in the end with it helping every day tasks.
When I am putting together a new post – I always try and find an inspiring quote which relates to how this illness can affect life but it will only get in the way if you let it. I don’t show that I have a chronic illness because I get on and live my life to the boundaries I know I am capable of. I do still work full time and a mummy to a 5yr old who is very active but I have a husband who is mega supportive and is always there to help and reassure me when I feel I am unable to do something. Which I know some partners don’t understand the daily issues we experience. I think what helps with my husband understanding as he comes to every hospital appointment whether it be a simple check up or a routine check up. He knows and understands I may not be able to process all the information given where as him being there, he can take it all in and if he feels there are questions to ask he will as he knows after the appointment I will remember something and want to ask it but he has already been two steps ahead.