Well having an invisible illness people over look you and believe that you are fine because you look fine on the outside to them when in fact they are wrong!!
When someone does want to listen to how you actually are feeling, the usual responses “i cannot imagine what your going through” or “i feel sorry for you”. When you hear the same response all the time you feel like you don’t want them to feel sorry for you as its an illness you can’t help having, you just have to adapt your life to accomodate it, so that you can live a normal life.
Medication taken for the illness does not always help how you feel. I currently take Methotrexate for my psoriatic arthritis and it does cause me side effects. I suffer with nausea on regular basis, have uncontrolable mood swings, restless sleep and fatigue. Taking medication to help with the nausea also has its own side effect of tiredness so I am constantly in a catch 22.
You never know what each day will bring you can be on top of the world one day then the next you can feel like nothing matters. This is common with having arthritis to feel like this as it is an emotional drain as you never know how people will take how you feel.