Monthly Archives: October 2016

Never give up

October 2016
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This is such a true quote. I currently attend hand class with a physiotherapist and it shows different ways to strengthen the flip in both my hands as that is mainly were my arthritis is. The class does help as my hands don’t ache all the time mainly when I am on a flare up ( this I never know when will occur).
I need to take this quote in more because when I am on a flare up I do feel like I just want to give up, but I know I can’t just give up as I have a loving husband and a very active 18 month old to contend with.
When you are feeling down just look at your family around you and just see how much they mean to you, they are your fuel to be strong and battle through everything.

Everyday living

October 2016

Well having an invisible illness people over look you and believe that you are fine because you look fine on the outside to them when in fact they are wrong!!
When someone does want to listen to how you actually are feeling, the usual responses “i cannot imagine what your going through” or “i feel sorry for you”. When you hear the same response all the time you feel like you don’t want them to feel sorry for you as its an illness you can’t help having, you just have to adapt your life to accomodate it, so that you can live a normal life.
Medication taken for the illness does not always help how you feel. I currently take Methotrexate for my psoriatic arthritis and it does cause me side effects. I suffer with nausea on regular basis, have uncontrolable mood swings, restless sleep and fatigue. Taking medication to help with the nausea also has its own side effect of tiredness so I am constantly in a catch 22.
You never know what each day will bring you can be on top of the world one day then the next you can feel like nothing matters. This is common with having arthritis to feel like this as it is an emotional drain as you never know how people will take how you feel.

A warm welcome

October 2016
Welcome to my page which goes through my journey with having Psoriatic Arthritis. Im a mum to a young child who was born prematurely at 28 weeks and married to my wonderful husband up until August 2015 I was not aware of what I as suffering with, I was constantly told by drs that it was just a skin allergy and that it was due to the fact I worked within a food environment and washed up a lot.
Having flare ups constantly every few days was hard work as my hands were red raw, weeping with a clear liquid which was built up under my skin and hands just being constantly sore from the flare up. The most frustrating thing was seeing so many different gp’s and being told the same thing when deep down you know its something else.
It wasn’t until July 2015 that I broke down infront of my parents due to frustration of always having my hands red raw and sore, along with my nails all pitted. I saw another gp then who could see my frustration and emotions at not knowing what was wrong with me. It was then I was told I have psoriasis and possibly rheumatoid psoriasis.
Within two weeks I paid to go private with a specialist because NHS was a few months waiting. Went to specialist and he confirmed I was suffering with psoriasis and arthritis. Once I was referred to rheumatology it was all finalised that my illness was psoriasis arthritis, so I am one of the 5% who have psoriasis that progresses to arthritis form.
I have decided to express all of my emotions and daily struggles with others who are going through the same struggles in life but feel they have no one  to talk about how they feel.
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